Steps Charity (formerly Steps Charity Worldwide)
Every day thousands of children are affected by a serious lower limb condition. These leg conditions vary in their symptoms, frequency and prognosis. But without the correct diagnosis, treatment and support, it would be impossible for any of these children to walk properly later in life. We have created a model of true local sustainability. We partner with health national systems and communities around the world not only to raise the medical standards, care and emotional support – but to establish them! The support we provide is elevating the standards of care around the world, giving a chance to everybody to walk without pain. As we like to say here at Steps, we don’t take walking for granted. One of the most basic support people need, when diagnosed with a lower limb condition, is to be able to talk to someone about their concerns. This is the reason why thousands of families and adults contact our Helpline every year. However, we recognise that many people would prefer to listen to another person or family that has been or is going through the same treatment in their own time and at their own paste. The Steps Podcasts have been created with this in mind. For you to hear how families and individuals have approached their lower limb condition, how it has or is still impacting them and how they overcame some key challenges. These podcasts are not meant to provide you with condition-specific information or practical guidance but they are intended to provide you with an opportunity to listen to other families and adults who are or have gone through the same as you to lessen your feelings of isolation. If you wish to speak to one of our Helpline advisors or require condition-specific information please call us on +44 1925 750271 or email info@steps-charity.org.uk
Steps Charity (formerly Steps Charity Worldwide)
Let's talk about Perthes: Rob's story
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In this episode we talk to Rob, an IT director of a company in London.
Rob was diagnosed with Perthes Disease at the age of 14. He had experienced pains in previous years but it was always dismissed as 'growing pains', until the day he thought he walked into a hole. Only to discover that there was no hole and that sensation he experienced was due to his hip slipping.
He was later diagnosed with a deformed hip due to Perthes Disease. Doctors told him that there was nothing they were able to do as he had to wait for a hip replacement.
Rob had to wait several years, going through a lot of pain until the day they agreed to perform the hip replacement. That day changed his life forever and he now runs Marathons!